Joined: 24 June 2005 United Kingdom Posts: 2776 Gender: Female
Posted: 01 May 2007 at 8:05pm | IP Logged
Dont know where to start, just know that I have to let this out otherwise Im gonna go mental! As you know, I have just started to get over a bad flare up with my EDS - or I thought I was! I have even gone back to work!
I have a trapped nerve in my back which is causing tremendous pain going down my right leg - its so painful that it collapses on itself and I fall over. I have been refused different medication or an increase in pain meds as I am on everything going. I had to have my nerve medication reduced as it was putting weight on me. I feel like I'm speaking a different language or something!
Aaanyhoo, I went to see my physiotherapist today who offered me another course of Hydrotherapy, which does help but you only get 6 sessions at a time and a referral to the Pain Clinic for some pain management. He is also going to go and see my consultant as he cant give me any exercises to do as I am in too much pain.
I soooo want to be able to take Lewis out in the garden and play with him - but thats just not possible at the moment. I wanna scream and scream loudly but no- one will hear me. Im sure the doc thinks Im a hypocondriac - but Im not - honest - what is happening is very real! I keep forgetting that I injure myself very easily but I also dont want to cut anything out, if you know what I mean!!
Im sorry for whinging ladies and gents - there are a lot of people a lot worse off than me, and I am trying to deal with that. But I am only human......
Joined: 29 June 2005 United Kingdom Posts: 2422 Gender: Female
Posted: 01 May 2007 at 8:12pm | IP Logged
aw hun i can totaly understand how frustrated you must be...keep going and keep your chin up,you know what your going through dont feel like you shouldnt get the help your entitled to,its just a shame that you have to work so damn hard to get that help eh!!! hope things start moving forward for you soon youl be in that garden in no time! take care xxxx
Joined: 07 June 2006 United Kingdom Posts: 4165 Gender: Female
Posted: 02 May 2007 at 3:49pm | IP Logged
How are u feeling today chick. Sorry not been about...been all blocked up and sulking. Hope its easing off a little bit for you so you can chill out in your funky garden
Joined: 18 April 2007 United Kingdom Posts: 15 Gender: Female
Posted: 02 May 2007 at 9:13pm | IP Logged
Hun so sorry to hear your having such a rough time of it at the mo, would be so great if someone could take that pain away for you, I hope you manage to get it sorted soon and get the help you deserve..........
Joined: 12 June 2005 United Kingdom Posts: 5857 Gender: Female
Posted: 02 May 2007 at 9:38pm | IP Logged
Sorry to hear about your pain.
Have you thought about seeing a chiropractor? I had a trapped nerve in my hip last year and I saw a chiro and it was an absolute miracle cure. I know Madz has had sucess with seeing one too.
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