Pregnancy Forums

Posted: 10 October 2007 at 8:04am | IP Logged

Hi all

My physio seems to be a waist of space, i'm not getting any better and before i go and see her i always try to tidy myself up (shave legs) which takes over 1hr to do as i can't get in a postion which is comfy to do this.

Not to mention the last 3 times i've been to see her have been nothing more than how are you... how's the pain and mobility.... when i answer no better or a little worse, i just get told to make sure i rest more and do less (which is impossible if i did less i wouldn't get out of bed and my kids would never get a change or to school etc not to mention something to eat! And then say's there's nothing more she can do and it's just going to take time ( already over 2 years including pregnancy time). And that she'll see me in a month or 3 depending on her mood!

So today i was determined to go in with the attitude if you can't help me refer me to someone who can...

However I woke this morning and oh my god i can hardly move, getting ds 1 to school is going to be a nightmare! So am i doing the right thing....

Cancelling my appointment? Or should i still try and go? I don't know what to do i just feel so urgh can't descride it politely!

What would you ladies do i don't want to delay any help i could get but getting places is vertually impossible today.

Sorry for any spelling mistakes not 100% with it.

Posted: 10 October 2007 at 8:08am | IP Logged

I would say...go and see her, that way she can see and assess the state you are in today if that makes sense.

By telling her no worse no better, she probably will only do the basics, but seeing the way you are today might give her the kick up the bum to do something.

I know itll hurt etc and youll be in agony for it, but it could be worth a try chica

Posted: 10 October 2007 at 9:27am | IP Logged

ok thanks for that steph.... i got in the car this morning to see if i would be able to get to the hosptial and i can't move my legs enough to perform an emergency stop, let alone move my legs to and from accelerator and brake.

I have rung round several mum's (all those whom i have numbers for) and they are at work... or have family over so i can't pull them away for a lift. Family are unable to help being so far away and that leaves dp whom has only just gone back to work and he wants me to cancel as he see's visits to her as a waist of bloomin time. So....

I have rung the physio department and i am waiting my physio to call me back... hopefully i might be able to wangle a home visit or something similar.... well here's hoping!

lets hope she calls back soon! Other wise i might go nod off to sleep with my lo!

Posted: 10 October 2007 at 9:39am | IP Logged

Poor you. Hope you manage to get a home visit organised, or at least they will send transport for you. You really need to get seen, and better that they see you like this - then they'll know how bad it is.

Good Luck. Sending a gentle hug Tsena.

xxx

Posted: 10 October 2007 at 1:06pm | IP Logged

Ok it's offical the nhs in huntingdon sucks.

My physio finally called me back at 12.25. When though pain levels, mobility, medication, if i've done anything to agrivate my hips...... which i haven't and when i've done nothing but rest and the minimum bum changes, loo visits and tea cooking on a bar stool, i'm no better off than if i potter around!

Sorry this is really starting to bug me and get me down. I do as i'm told no better off, am naughty same thing!

She say's there's nothing more she can suggest and that she doesn't have the answers and when i asked well refer me to sommeone who can she said she couldn't think of anyone, but she would discuss me with her collegue who apparenetly specialises in long term pain management and mobility... but she's off sick so i'm not likely to hear anything for another couple of weeks.

She was pleased that my gp was refering me to a pain clinic but wasn't hopefull that it would help in the long run but might help the pain...dur?? i hope so after all it's a pain clinic!

But she does want me to look at surgery and see if it might be something to go for as it's not helpful for everyone and it depends on the individual how much it works but she thinks sorting the pain is the key way to go....

So no answers just a converstaion of hopes shattered and one full of waffle!

Posted: 10 October 2007 at 1:18pm | IP Logged

Thats just huge massive stinky granny pants!!  I know exactly what its like to be in that situation - stuck between a rock and a hard place!  Huge gentle hugs for you hunny - I totally understand -  and it feels like you are talking a different language and at the end of it theres just a conversation and no progress.  Tell me about it - it happens to me a lot - people just dont understand do they?  What can we do - it makes me so mad!

Posted: 10 October 2007 at 1:34pm | IP Logged

Hiya hun,

Your story sounds so similar to mine it's scary...

I was referred to the pain clinic and I expected tips on how to 'manage' the pain, go over pain relief etc etc... nope! it was just a case of "let's talk about it... grrrr". At times it's as if you're hitting your head off a brick wall: all you want is someone to understand exactly what you're going through and hopefully do something to help.  Unfortuantely, no-one seems to have the answers with this though.   I've been to a physio, who referred me onto the hydro pool (which I was thrown out of because like you, I couldn't get myself there at times and they refused to send transport. Two missed app's and your out - no excuses!). 

I was attending 'pain clnics' in between this and still, all they did was talk.. I was then sent to a gynae, who did a total hysterectomy (to sort the fluctuations of pain before/during my period), I went to an orthopaedic surgeon who plated me (and I now know that he made an a**e of it) and since then it's been back and forward to various consultants who all said "mm, it's a swine of a condition, not much we can do".. through to "mm, sometimes the mind can make us 'think' that we feel pain when really we're just depressed"

The breakthrough for me was being sent to an orthopaedic (sp?) surgeon who was a 'pelvic' specialist.. Finally, someone who truly understood (min you, getting stuck trying to stand up and him hearing the 'click' ((he thought it was the chair at first)) certainly helped.. I'm now waiting to go in to get the plating done correctly with two plates accross the front and one in my back (it's normally one) and here's hoping this'll help - I certainly can't get much worse as it's been horrendous lately.  Like you, I have kids too (2 of them) and it's sooo difficult trying to do all the very day things that others do without even thinking about it..

Anyway, I would suggest you get your GP to refer you to an orthopedic consultant (preferably a pelvic one), they should then do x-rays etc to check if you still have a 'gap', how wide it is and than make you suggestions on what, if anything they can do.  In the meantime, ask your physio to refer you to the hydro pool as it really is so much better in water and hopefully your hospital will have a better system regarding transport (I think half the problem though is just getting the condition/symptoms treated seriously).. Other than that hun I don't know what else to suggest as I know you know all about the 'keep your knees together' getting in/out of the car etc (all the basic managing tips) but I really think you need more than that now.  Unfortunatley it's a condition that you really have to fight for it to be taken seriously (unless of course you get someone who knows/understands straight off - then you've struck gold!) and in some instances, you need to keep fighting (like me).  You know your own body hun and you know what's right/wrong, you just need to make others see it too..

Good luck hun, I'll be thinking of you and please pm me when it gets to you (it gets to me quite a lot), sometimes it helps to share..

Posted: 10 October 2007 at 1:53pm | IP Logged

Oh my god i really do wish right now i was an animal and i could be put down! My physio doesn't want me swiming or anything. I'm following all the basic rules but i can't shut my legs i have to have a gap so i have a pillow use that to keep the gap the same when moving and changing positions.

I've just taken it upon myself to ring the pain clinic that i've been refered to in a hope to gage how long a wait i'll have and i was told patients they are recieving now have to wait until..... end of feb if lucky but more than likely mid-end of march!!

Was hoping no more than 13 weeks which would be december! But 6 mths I don't know how i'm going to keep plodding along! Sorry haven't the heart to call family as it'll only worry them so much being so far away, they already feel really helpless.

Posted: 10 October 2007 at 2:23pm | IP Logged

Yup, I can relate to that too hun..  In fact, they wouldn;t allow an animal to suffer the way we do, they'd be treated more humanely...

Regarding the swimming hun, I can't swim (because of the dsp) but the hydro is actually a physio session in water (in a very small pool - you couldn't swim if you wanted to - I think that's so the physio's can keep control of their patients - lol))where they get you to do excercises.. It's a lot less painful than 'normal' exercises because of the 'boyancy' of the water so your not weight bearing per say...  To be honest, just stepping into the pool was absolute heaven as the waters really warm and for a little while you just float, I miss it now just thinking about it, especially as I can't get in/out of the bath (boy do I miss that too, a glass of wine, a good book and shut the world out...  definitely heaven, and definitely part of my life 'before SPD')

Obviously sepak to your physio about it but the whole reason I was sent there was because the 'land' physio couldn't do anything with me..

lots of love and very gentle hugs hun..

Jen