Pregnancy Forums

Posted: 14 November 2007 at 9:54am | IP Logged

Oh Jen.....I'll be thinking of you xxxxx

Fingers crossed this works for you x Give my love to Steven and the kids.... Caera says hi too x

Hi Tsena

I live in Fife with my hubby Barry and our 3 kids... Caera (9) Thom (7) and my wee man Finn (4)

The SPD started when I was around 12 weeks pregnant with Finn, I hadn't suffered with the other 2. I think it was finally diagnosed when I was 24 weeks, before that the doc actually laughed in my face and told me not to be so silly, the pain will go when you have the baby!!!!! It's only a sore back!!! Needless to say I haven't bothered going back to see him! Anyhoo, my pelvis separated at 30 weeks and I was in a wheelchair for the rest of the pregnancy, injecting myself with Fragmin for the last 4 weeks as they were so scared I'd have a clot. My care in the hospital wasn't much better, in fact I'm sure that I'm still in this state due to Finns tramatic birth. I can't think about it now without crying

We've struggled along for the last 4 years, trying not to bother the doctors here mainly because they don't have a clue and they're not interested in trying to get me better. Hopefully the consultant I'm due to see will do something.... we can't carry on like this...

Cherie x

Posted: 14 November 2007 at 10:29am | IP Logged

Hi Cherie, I'm Kim and I've suffered with SPD since pg with Ruthie 11 years ago. I am from Fife originally, although living in Norfolk at mo with dh, who's in the RAF. I had Ruthie in Kirkcaldy, and had appalling treatment during my pregnancy - there seemed to be a complete lack of knowledge of SPD. I had hoped things would have improved by now!

Sorry to hear that you are struggling so much. Please feel free to give me a shout if you need to chat - I know there are lots of us on Madmums who can understand what you are going through.

xxx

Posted: 15 November 2007 at 3:54pm | IP Logged

Hi Kim

Where about in Fife? We're up in Cupar Nice to talk to another Fifer

Posted: 16 November 2007 at 9:42am | IP Logged

Hi Cherie.

I'm from Dunfermline - although lived in Rosyth for a wee while too. Mum and dad etc all still there, so we head back as much as possible! hehe You can take the girl out of Fife.....but not the Fife out of the girl!

Hoping for a posting back to Scotland in the nearish future - were in Lossiemouth until May this year - although I'd like Leuchars this time!

xxx

Posted: 16 November 2007 at 10:36am | IP Logged

Hi hun

Firstly i take my hat off to you, i don't know how you did the lip biting, part for 4 years. I hope that things now start to get sorted for you. Have you had anything that has helped you keep strong and going at all?

It sounds like your family has really rallied round....(please forgive me if i've got it wrong).... Hope you are all well and something gets done x

Posted: 22 November 2007 at 4:38pm | IP Logged

Hopefully you'll get the Leuchars posting Kim...we'll probably see each other around if you do

Tsena, I started painting again after a break of around 10 years....it's helped me get me back, if you know what I mean. It's given me an outlet for all my frustrations, but I was creating so much at one point I had to look for people to take my work. So far I've got work in a few local galleries, and I take part in exhibitions round and about. Really exciting news today tho...a gallery in Stoke on Trent wants my work! Fingers crossed!

Crumbs...everything seems to be happening at once for me at the mo Yesterday I saw a midwife who's doing alternative therapies for ladies with SPD. I hadn't realised that she was doing reflexology on my hand until it started to hurt! Ouch! I thought reflexology was meant to be relaxing Anyhoo...I'm seeing her again next week

My appointment came through for the orthopaedic consultant...it's on Monday! I hadn't expected to be seen so quickly, but I suppose that's a good thing....it'll give me less time to worry about what he might suggest

Posted: 22 November 2007 at 5:17pm | IP Logged

Hi - I must admit I know little about SPD, however, I work for a pharmaceutical company that is currently developing a treatment for "Neuropathic pain" - which to you and me is Nerve pain. 

As part of my job I work with pain clinics all over the country and as a result know many pf the pain Consultants and nurses within the departments.  I have also picked up experience of various drugs prescribed for different types of pain. 

Gabapentin and pregablin are commonly used for various types of nerve pain with varying effect.  From my experience some patients see life changing effects whilst others see little or no effect, this is normal with most pain drugs, even the best sometimes only work well for 20-30% of patients and there are no clear indicators that the doctors can use to try to predict how any individual will respond hence the frustrating and lengthy try it and see approach to pain managment.  It seems definitely worth a try.  Remember if you have side effects or it does not work this drug should not be stopped abruptly.

Let me know which pain consultant you are allocated and I may just know them!!

If you have not done so already you could try the Fife pain association for advice: http://www.painassociation.com/events.html

Hope this helpks a little.

x

Posted: 22 November 2007 at 5:26pm | IP Logged

Thanks for the link, not sure I'll make it to the next meeting as I'll probably still be at Ninewells at my appointment.. I haven't got a pain consultant at the moment, that's another thing I'm waiting on but the referral is in place so hopefully I'll get one soon.

So far I'm not sure the gabapentin is doing much, thankfully I haven't suffered from any side effects so far, but it's still early days.