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Seeing pain doc for first time Topic: Seeing pain doc for first time

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offline zanynut
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Posted: 16 November 2007 at 11:17am | IP Logged Quote zanynut

Hi all

I'm seeing the pain clinic doctor for the first time next week and i am trying to compile a list of questions to ask....

I've written down all medication i've taken for my spd and the effects it's had on me (from madz's advice in a chat one day) i'm currently waiting on my gp to get back in on monday to confirm all the mediation to make sure i haven't missed anything.

But when it comes to a list of questions i've gone blank and just can't think of any for the life of me..... apart from can i leave a tsena shaped hole in the door? (don't like needles).....

So what i suppose i'm trying to ask in a waffling kinda way is what questions would you ask and what would you want to know?

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offline Madzwalker
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Posted: 16 November 2007 at 11:46am | IP Logged Quote Madzwalker

At the clinic I was reading a leaflet which said if you think it'll help then compile a list, no more than A4 of your medical history, meds etc.

I found Dr M answers most of my questions before I asked them. You may find he doesnt offer you the injections first off and goes a different route - although I'd be suprised as you are so similar to me.

I would ask if he can recommend any other meds which might have a better effect than what you are using/have used.
Does he know why you got SPD or where susceptible to it?
How long does he think it'll be before you are pain free or at least feeling more mobile?
What are the current waiting times?
How long a course of injections does he think you'll need?
How often will he do these injections?
Ask him to copy you on all correspondence to your gp. He does that for me.
Make sure you ask about your allergies.

TBH I would think he'll answer these questions himself. It might be helpful mentioning you know me and know of my treatment as he will then be able to explain things a little better.

I will get back to you with more questions.
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offline zanynut
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Posted: 16 November 2007 at 1:52pm | IP Logged Quote zanynut

Ok thanks Madz hun.... this is everything i have so far from meds to questions....can anyone see anything i've missed?

Medication I have been on/tried

For SPD Pain Management

Current medication:-

·         Paracetamol (500mg) 2, 4 times a day

·         Naproxen (500mg) twice a day

·         di-hydracodine (30mg)

·         Lansoprazole (30mg) gastro-resistant -1 a day

·         Metoclopramide tablets (10mg) 1 tablet 3 times a day for nausea

·         Ora-morph

·          

Medication tried but didn’t agree with:-

·         Ibprofen – post pg but did nothing for the pain

·         Co-codamol – used as a stop gap till I was able to get an appointment to see gp – did very little for the pain.

·         Codeine phosphate (30mg, 4x a day) – made me feel sick and loss of appetite.

·         dihydrocodeine (40mg) -  loss of appetite, sickness

·         Amatripuline (10mg) – with it increasing slowly,,,,,spaced out, not alert, unable to function

·         Gabapentin (300mg increasing upto 3 times a day from 1) – gave me really bad constant mouth ulcers (paste and bonjela didn’t clear it, really sore and so bad that I didn’t want to eat etc) and didn’t really do much for the pain (left no different once off them apart from no mouth ulcers.

·         Tramadol hydrochloride (50mg) – Insommnia

·         Buccal Tablets (Procholoperazine) didn’t work still felt very nauseous

·         Diclofenac Sodium Enteric coated Tablets (50mg) – Caused me bad indigestion and heartburn.

(Not for SPD:- Cetrezine Dihydrochloride (10mg - allergy)  and Beclometasone (hayfever))

 

 

Questions I want to ask?

Do you know why I got SPD or if I’m just susceptible to it? – Can you see from the x-ray if it’s a normal gap or is it dsp?

What can you do to help me?

Is this just going to make the pain disappear or will it just be painfree but I’ll always have walking problems?? How long do you think it’ll before I am pain free or at least feeling more mobile? (What is the realistic/most likely out come?)

Are there any other medications you can recommend me which might have a better effect than the ones I’m currently using/have used?  As I’m fed up of taking tablets which do nothing….

IF injections are mentioned as a way forward….

How long a course of injections does he think I’ll need?

when/how often will he do these injections?

If I took the injections (if offered) what’s the likelihood of it making things worse?

What is the procedure? Can partners be present?

What are the current waiting times?

What are the chances of something going wrong and what would be the worst case?

Can you copy me in on all correspondence to my gp?

Mention my allergies…. Will this be a problem? Latex etc.

 

Sorry it's a long one ladies i just don't want to get there and find i've missed something!



Edited by zanynut on 23 November 2007 at 9:52am
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offline Cherie
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Posted: 22 November 2007 at 7:24pm | IP Logged Quote Cherie

How did you get on today Tsena?
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offline zanynut
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Posted: 23 November 2007 at 8:26am | IP Logged Quote zanynut

Hi All - warning a long post and might waffle a bit as i'm not fully sure if how to put some of it

I didn't mean to keep you all in suspence yesterday but i had my appointment and walked away a little in shock. I wasn't expecting to be told i have a 3 things wrong with me and he can help with just 1 of them!

He examined me, but before he'd started i heard the nurse say are you giving an injection! That was it i was on my feet ready to run, dp just said sit and then held my hand and he's got a good grip!! Then i heard no not today and then this twange..... urm hope thats not a latex glove i ask.....urm yes why, replies doc......urm i have a latex allergy......oh crumbs let me go and see if i can find any latex free gloves..... nope can't find any i'll wash my hands twice and have to do it bear handed! Then he starts legs bending everywhich way etc and omg i nearly puched him thrice, and i would have done if i wasn't gripping the painful spot. Even suprised dp with the ammount of pain i had.... getting better at hiding it! Or i'm getting too used to it!

Anyway the up shot of it all is....

I have hypermobility and i need to see my gp about how severe etc.... as this has given me flat feet which has caused my hip pain.... (hip pain is not linked to my spd!)  - need to see a private physio - one he's named in cambridge to get insoles made for my feet and special exercises for hypermobility and flat feet.....

As a result of the hypermobility i have very loose ligaments in my hips and knees etc which he can't sort but he's hoping what he's going to do for my spd might improve it a little..... but has said by the time i'm old i will be a cripple.

(once getting home i googled hypermobility and i have had knee joint problems for years and it's been put down to tearing cartalidge but i'm not so sure now as it should have healed itself but it hasn't.... also i was diagnosed with me 6-7yrs ago which is commonly misdiagnosed when it should be hypermobility as the correct one, so i'm now waiting to find out what do i do now, my gp's not in till monday but it's made me a little low to say the least.

Right now the spd.... i'm going to be having the same injections as Madz but he didn't want to say how many etc just the first one will be within 13weeks and subsequent ones further apart as there's no goverment waiting times to adhere too! He didn't change my meds as he said i'll leave them where they are as you been on so many and i'll get you in for pain injections for your spd. Didn't really go though the procedure or anything.

He was very nice but i'm glad i took my tablets with me..... definatley needed them afterwards.

So all in all i'm not 100% sure of what the outcome will be, but all i feel is very low and depressed at the moment, trying to think if the injections are really worth it all if it's not going to help the whole picture etc, i have a huge fear of the unknown! Last night i came home was put to bed striaght after the kids and have been drinking morphine all night (before you panic 2 doeses 4hrs apart dp supervised) to try and cope with the pains...it did a bit for the pain this time but i found it no longer makes me wanna puke! Typical.... DP fed me in bed and waited on me, i must have been worried as he normally sleeps on his front due to his sleep problem but last night he didn't let go of me for a second.

Sorry it's so long 'm still trying to get my head around it all and what it means.

Thank you all for your support.

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offline Angelica72
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Posted: 23 November 2007 at 9:25am | IP Logged Quote Angelica72

Oh Tsena, poor you. That is a lot to take in. It's good you've got Madz to fill you in on everything to do with the injections though.

Your Dp sounds very supportive - that must be a big comfort. Too many people don't understand how painful a condition this is, if they haven't experienced it themselves. Am glad you have good support.

Hope you managed to sleep a bit last night.

Gentle hug

xxx

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offline Madzwalker
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Posted: 23 November 2007 at 10:30am | IP Logged Quote Madzwalker

I'm sorry I couldnt see you today! I really wanted to talk to you.
Look I know what Dr M sounds scary! But heres the thing: I know because thats exactly what he said to me (bar the flat feet). I have hypermobility and was (his words) a MESS!
Now on wednesday was the first time you've seen me in real pain, we've known each other for over 2 months (seems longer I know) and I have been basically SPD free in that time, when I went to see Dr M I was like you, constant pain, walking stick, thought I was never going to get better! I know have approx 2 pain free months in every 4! And that is improving. Yes we are more prone to problems now as we get older, but focus on the here and now! He can make the SPD better! And he will do it!At least he undertstood what was happening to you and how much pain you are in! He will make it easier for you. You now know why you have the pain, and what can be done to help you. I promise you this will be the past soon, not the present!
Sending huge huge hugs!
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offline Cherie
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Posted: 23 November 2007 at 4:29pm | IP Logged Quote Cherie

Big gentle hugs     hope you're feeling better soon xxx
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offline mum of 4!
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Posted: 23 November 2007 at 7:42pm | IP Logged Quote mum of 4!

I'm affraid i haven't the slightest idea what you are going though, never having suffered with this before myself... but i just wanted to send you my thoughts and best wishes that you get the best possible care avaliable to help you cope with it!

It must be a relief though that you have Madz right there by your side supporting you through it, you couldn't ask for anyone better could you? lol

Well i hope you got all the information you needed, and you will soon be offered something to ease your pain.
x-x-x

 

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