Pregnancy Forums

Posted: 10 January 2008 at 9:04pm | IP Logged

Hi All

As some of you may remember from my previous post a while ago when I saw a pain clinic doctor for my spd back in November 2007, well I’m still waiting for the treatment to start but I don’t mind the wait it gives me time to get my head round it all. Well my gp referred me to rheumatology to find out if I defiantly had hypermobility as she didn’t know much about it or what it means for the future. As pain doc said the spd pain he can deal with/treat but the pain in my hip he can’t as they’re not linked and are different things.

I went to my first appointment to day and for a change it was lovely…. The lady (sho) that I saw really put me at ease and was 100% friendly and nothing I said was silly or stupid (well there’s always a first time for everything!)

Outcome after a lot of prodding and poking, measuring etc is…. It’s confirmed I do have Joint hypermobility and score full marks (which isn’t a good thing….), I’m now waiting for a mri of my hips and pelvis, and an echo of my heart as I’m in a category where I could have an enlarged aorta…. And back to see them on the 2^nd May, at this appointment I’ll find out if I fall into the right category for pain relief and steroid treatment ( I think that’s the mixture she said) via IV. At the moment I’m apparently doing all the right things and I’ve been told I will never get better, but it might become more manageable and therefore a little easier, that I may and most probably deteriorate over the years and I shouldn’t rule out a period of my life in a chair…..

Well at least I know what I have to look forward to… and I’m finally seeing people who understand my medical conditions, spd and joint hypermobility….. so let see…. I’m now officially a druggie and most probably will be for remainder of life!! Can’t wait to try and explain that one if I get stopped by the police!

Posted: 11 January 2008 at 8:05am | IP Logged

Good for you chica....did you ask for a certificate for scoring so highly...I did ahem.

Id get stopped by the police on purpose just to see what they would say...no wonder joe would never let me drive straight after id have chemo...which I thought was so unfair....you can just see it :

Madam...have you been drinking....only tea and water orrrrficer..

Madam have you taken any substances....yes orrrrrficer..

I see madam....what exactly have you taken madam....

Erm...mr policeman...you might need a bigger notepad, and have you got enough ink left in your biro....

OOOO steroid treatment...your sooo going to be bouncing off the walls..enjoy the not being able to sit still thing, itll really wind you up. At least youve now been told what youve got coming at you..now youve just got to get your head round it...then suck it up and get on with it.  Sounds harsh I know..but its the only way round it chica..

Besides, if you do end up in a chair, well whooopdiiidooo, just think of all the ankles you will be able to take out in town!  You can soooop it up if you get a powered one, youve deffo got to get one of those scooter things cos they look ace fun, you can seriously accessorize it with madmums stuff, get some sparkly tassley things the works..aaaand if your really really good, do you remember those clacker things you used to put on your bike when you were a kid...or a playing card with a peg so it made an obnoxious noise...oh the fun...right am so coming to your house when you get gadgets!

First off though..ive got to go see funchick to erm..lets see de-pink her chair lift, oh yeah and knock a hole through her upstairs, so we can soooop up the lift, fly out the hole in the wall at top of stairs and land on loads of mattresses out the back...and then start all over again.

Chin up chick

Posted: 11 January 2008 at 9:41am | IP Logged

Pmsl steph, i already have the mobility scooter! If i'm going to be on my feet for more than 5 mins i have to use it a otherwise i'm like a soggy teabag.... Sucking it up isn't harsh hun it's the reality of life and even more so part of being a woman (in my views)...

My lo has learnt how to stear it the otherday and took me by suprise in the middle of tesco! He must have thought we were at the bowling alley as he got a full strike on a newly, high tower of wine! pmsl! one shop keeper looked at me and i just pointed out it shouldn't be on the floor and if she wanted to have an argument i'd win as aisles should be kept clear etc.... she soon ran off with egg on her face!

As for wheels it doesn't bother me, just means i become a bigger drip if it's raining before i get my butt in the car!

We need car bumper stickers with madmum's on it so i can get sticker happy on my car and scooter!

Posted: 11 January 2008 at 10:13am | IP Logged

Hi Honey

Glad you're sounding so positive about it all.....I got my appointment for my MRI on Wednesday, it's on the 23rd so hopefully I wont have to wait too long after that before I see the consultant again.

It's a shame you're so far away....we could've terrorised the streets together in our chairs lol

Posted: 11 January 2008 at 10:19am | IP Logged

lol.... sounds like fun :) but i do love the idea of flying!

Good luck with your mri, have you had one before....?? Just be warned they are very noisy machines! I hate the waiting to find out things but at least i know so i can plod along... it's just lovely to know it's not in my head like many docs etc have tried to get me believing!

Posted: 11 January 2008 at 10:30am | IP Logged

I had one nearly 4 years ago in a different hospital...........they sent me away saying there was nothing wrong with me, liars :( I think the consultant I saw had no experience with SPD so just dismissed it all :(

Anyhoo this time I'll take my own music along with me.....last time I was forced to listen to Dido, I can't stand her now lol :)

Posted: 11 January 2008 at 10:34am | IP Logged

pmsl sorry i read dido wrongly  did make me laugh though!

Either that or he was a typical man and didn't know jack! Hope you get somewhere this time hun xxx