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autism Topic: autism

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offline annste
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Posted: 06 February 2008 at 1:53pm | IP Logged Quote annste

hi my name is annmarie, I am a new member, I have four children, philip 21, micheal 19 anita 17 and lewis who is three, my youngest lewis has been diagnosed with global development delay and lots of other things, I have been telling all his helpers for the longest of time that it is more than this, now suddenly they think he might be autistic, what a shock, if they had of listened to me his mum in the first place they would of tested  him along time ago, there argument is they cant test children until they are three, anyone else had the same problems
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offline doubletroublewitty
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Posted: 06 February 2008 at 2:12pm | IP Logged Quote doubletroublewitty

Hello and welcome to the site.

I'm Emma and i'm mummy to Ashleigh and Jamie-leigh.

They are my 3 year old twin girls.

I'm sorry i can't help as i have never had to deal with this problem.

I'm sure there will be someone who has or knows someone who has.

Hope you are enjoying the site and hope to chat soon. xx

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offline mum2joshua
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Posted: 06 February 2008 at 3:08pm | IP Logged Quote mum2joshua

Hi and welcome to madmums!

Im Christine, 24 and single mum to Joshua who is 4.

As frustrating as it is, it is really difficult to diagnose any illness on the autisic spectrum on children under 3, and in a lot of cases the child is even older than that before they are tested and diagnosed. I hope that your son is tested soon, and you get the right support and treatment needed for you and your son.

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offline annste
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Posted: 06 March 2008 at 2:14pm | IP Logged Quote annste

hi, went to see the peadiatrician two days ago and asked if he thought my child had autism, he didn't even look at him or talk to him, he paid no attention to my son what so ever which is very frustrating, how can a consultant possibly deal with a child when all they have in front of them is x amount of reports from various professionals and not even know that this child had been diagnosed with hearing problems let alone had grommets fitted a few months previous only to find that oh dear it wasnt his hearing after all, ask over his global development delay and if the bleed on his brain had left any damage,was told yes he will have damage from the bleed but the extent is not known, I have been asking for three years if my son has brain damage and have been told every time I have asked that he will not have been left with brain damage now all of a sudden simply because I want a brain scan it has been revealed that he does have brain damage, he is having a scan  and I am awaiting now for the appointment, how can consultants feel the need to not tell parents what is wrong with their child or give them something to go on, parents are not stupid they know when something is not right with their child and they more than likely know exactly what is wrong but will any one listen, no they wont  because professionals don't have a report in front of them telling them what is wrong, don't parents have a right to have their say shouldn't what parents feel is wrong with their child looked into, it isn't all these professionals who spend 24 hours seven days a week with the child it is the parents, surely that should count for something, has anyone else come across suchignorance in the health profession oris it just me.
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offline Vickimom
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Posted: 06 March 2008 at 6:45pm | IP Logged Quote Vickimom

The reason they can not test until about the age of 3 is due to the natural development being different with each child. However, my youngest self harms, neither have the same response to pain as most, and their speech is very slow compared to my older ones. I have said since my 4th was born there was something different I just couldn't actually pinpoint it. My older 3 were fine, my almost 3 yrs old is now in the system to be checked for the milder version Asperger's syndrome, and my youngest just over 18 months has been recommended for tests as he so far isn't speaking and is alot later in some developmental issues as well. As for the ignorance in the health profession, I found that no one was listening to me with my older of the 2 until I mentioned 'autism' and then all of a sudden all the doors were opened. I hope things start happening fast for you.
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