Pregnancy Forums

Posted: 01 May 2008 at 12:19pm | IP Logged

Hope i've got this in the right place!

I know it might seem silly and pointless post but I’m seeing rheumatology on Friday (ops tomorrow). To finally get the results of my MRI I had done in January and I’m hoping it’ll contain a sliver lining that I can use. Since I last saw them my health as a whole has deteriorated and I seem to have every part of my body failing from jaw to wrists, shoulders, ankles, knees and not forgetting my hips and the SPD pains. I can't believe how much I'm falling apart from having SPD and my pregancies but supirsingly I don't hate or resent my children which I suppose is a good thing! lol

I’m nervous that I will have my time before I’m in a chair brought drastically closer but I’m trying to be positive I have to be for my boys but I’m hoping once I find a garden contractor and everything gets sorted I can let my boys enjoy the garden etc and I can just do my usual and supervise!

I know I can’t get all the possibilities straight in my head yet till I know the results I just hate waiting and all the possible what if’s and I know I shouldn’t try and think of them but I’m already living day to day and yes it’s hard but it’s just about doable.

My biggest problem is not worrying and I do worry about everything! Argh roll on tomorrow so I can get it out of the way and hopefully have some answers (hmmm but then again this is the NHS!),  probably be more waiting!

Posted: 01 May 2008 at 7:18pm | IP Logged

  Please try not too worry (I know easier said than done) Best of luck for tomorrow and I hope you get some answers. xxxxxx

Posted: 02 May 2008 at 4:13pm | IP Logged

Hmmmm well i'm not sure what to make of my appointment.... i was kept waiting for ages appointment was at 12 so i left madz (who had my youngest for me) at 11.30 and i didn't get back to hers till 3pm!! I'm cream crackered to say the least but i'm glad i didn't have my son with me i would have been at a loss trying to keep him entertained for that long.

I saw the consulatant today and was told my bones are in good order it's just the ligaments holding them in place are cream crackered, i have been told that i am eligable for a treatment to strenghten and protect the bones but not till my other joints have subsided.... till then i have to go back to physio (who for last yr has been telling me there's nothing more she can do), and do exercises to learn normal paramiters (sp) for joints and muscle excerises to build up tone.....  as aparently the only thing to stop me ending up in a chair is to keep going and working my muscles etc.

He has said that the pain i feel is very real and that the meds i'm on won't ever take away a huge proportion of the pain, nothing will....nice! The exercises are going to hurt like hot fudge, and i have to keep going and moving...

He wants me to ring around and go swimming to help keep me moving....hmmmmm but how do i get in and out of the pool?? So thats a job for next week! As for the walking problems i have etc he wants me to start walking more and pushing myself more than i have been doing and work though the pain no matter how bad it gets..... even if i physically can't move i have too..... regardless of tears etc.

So that all not sounding good and i have to do this for 3-4 yrs before i start seeing minimal improvements and as long as 10yrs plus till i can walk and possibly run but always with a level and degree of pain!

On a positive note though as my bones are currently in a good condition.... by the time i reach 70yrs of age i'll hopefully have a normal range of movements and not a reduced amount like some members......

So i have to keep plodding along regardless of pain and keep going so no rest for the wicked and no pain no gain!

So i'm feeling a little peeved off, let down at the battle that lies ahead...... half of me feels like giving up and saying f it all! But i can't for my kids.... argh why can't things be easy!!

Posted: 05 May 2008 at 8:56am | IP Logged

hun,

i wished i could say something to help as you and madz have been a source of info , comfort and inspiration for me.

i have seen physio this week and she gave me exercises to try in the pool too. at least i can get in and out despite the struggle and pain especially on those steps.

this morning i have been looking up the timetables for pools and i am sure that there is at parkside in cambridge a hoist to lift in and out. in the abbey too there is one. leave it with me and i'll confirm later.

take care

gentle hugs this time!