SPD - Symphysis pubis dysfunction Forum

Posted: 29 May 2008 at 4:04pm | IP Logged

Awww Jennypenny, i'm so sorry i never realised that you where the ones that originally started this petition.

If there's anything i can do to help in the battle to get spd recognised and heard let me know.

Posted: 29 May 2008 at 6:20pm | IP Logged

Yeh, and you can imagine how angry and disappointed I was at the response!! I don't know if it would have been treated more seriously had more people signed it as there was a certain amount upon which they HAD to look at it.. I'd posted it here, asked the pelvic partnership to support it (I didn't hear anything back from them and given that they are meant to be the main support/information site for this condition, what hope did we have?) I also posted on the delphi forums too, so in theory there should have been more than enough signatures.. needless to say apathy set in and overall we only got 2/3 of what we needed.. (yet people campaigning for the rights of cucumbers got enough - what is that all about??)

Posted: 29 May 2008 at 6:38pm | IP Logged

 good grief jennypenny, if you want any help off me give us a shout. I am off work at mo, on crutches waiting for a belt. Just been given a script for gabapentin, fingers crossed. My little girl is three now and I have had a limited amount of physio, an nothing during pregnancy was confined to one room basically, (refused to stay in hosp over xmas). Sorry for waffling, let me know if I can do anything, Good on yer for starting it

Cheers jackie x

Posted: 29 May 2008 at 7:07pm | IP Logged

I have no idea why people deem cucumbers more important.

I can't remember how i found it now..... but i signed it before i joined the site. It's amazing to think they only consider looking at things with x amount of signatures on it.... i think that in itself is unfair.

I'd never heard of spd till i was surfing for advice in tears on day on another site and only found this one via a friend.

I can only begin to imagine how defalted you are both feeling, i'm glad i did sign it though.... but let me know if i can help in any way in the future.