Pregnancy Forums

Posted: 08 July 2008 at 2:10pm | IP Logged

Sorry this is a rant thread.

I have just about had enough. My injections this month havent held on one side, leaving me in agony again, struggling to walk, using a stick and not sleeping. It is my left side that has gone and it is my left side I have wrist problems so it has made that loads worse having to use a crutch on that side.

I have contacted the hospital and the best they can do is possibly offer me another clinic appointment but only after she has spoken to my consultant (who isnt in til friday) so its no guarantee. Even then, with the waiting times, who knows when that will be and even then how long it would be before she could do anything. On top of that the secretary was so rude and blunt - like my feelings really weren't important.

Its thrown the whole future for me as I've been so determined these injections are the way forward for a better future for me. If they dont work then I dont have many other options left. I feel so down and depressed.

The medication has been causing me problems sleeping again - as well as causing hot flushes and flu type symptoms (at least I think its the medication). I'm seeing the doctor this afternoon but I know there isnt much they can do anyway.

I'm sorry I'm just sick of all this. I know lots of you are going through this. I am just used to seeing that light at the end of the tunnel, the injections - now I am facing 3 months of this before my next round of injections. I had so many plans and they will all have to be cancelled. I am considering applying for disability after putting it off for so long because I want to go back to work now but this is meaning I cant cope.

Posted: 08 July 2008 at 5:25pm | IP Logged

Good luck at the doctors.

I have been having similar symptoms, flu like, hot cold flushes and nausea and have put it down to medication.

I don't know what to say hun cause you know what i would say.

I hope something can be sorted but you've coped before and you did when they mucked up and you can again if needs must. It's a joy of being a mother.... you get woken up and made to function.

As for working it depends on you.... if you want too and the number of hours. It's something you need to decide and talk though with tony. Cause for me it's the most depressing label i have ever been given.

Give the hosptial a bell on friday and ask your gp to write to the main consultant regarding your care recently and if this is a possiblity of what could be the outcome etc. Also see about changing back to the consultant you had the success with.

Ok i'll stop there as i'm saying all i said i wouldn't.

Hugs and you can do this, you just have to believe you can and want too. You are alive and not dead or facing a death sentance so keep plodding chin up etc and remember my fav phrase 'what doesn't kill you only makes you stronger'

Posted: 08 July 2008 at 7:16pm | IP Logged

  Madz, I wish i had a magic wand which could take away all the pain you and many others on this forum suffer. I had never heard of spd before I joined this forum and the suffering all you ladies have to put up with makes me really admire you. You all have families to cope with which is a hard enough job without the constant pain you are in.

   You have every right to rant and I know how much these injections mean to you and the difference they have made to your life.i really hope that this is just a hiccup and that they will continue to work in the future. I hope you get some joy when you eventually speak to your consultant. Applying for disability allowance is not saying you can't cope. It is asking for a bit of extra help which you are entitled to and feel you now need.

   You are a strong woman Madz, a great mum to Edward , I really hope you can soon see the light at the end of the tunnel again .

Posted: 09 July 2008 at 12:44pm | IP Logged

Well the doctor has put me back on Oramorph to take whenever I need and to keep a diary. I'll go back in 10 days and get put back on prolonged release to the correct dose. There isnt much more he can do and he doesnt hold out much hope that the hospital will do anything much to help. He thinks the hot flushes are to do with my increased dose on anti ds but he will monitor it when I go back in 10 days and examine it if its still a problem as it should wear off in next couple of days.

I have decided to go ahead with the disability allowance although it is depressing filling it all out. Its hard to know what to put and how to explain it as I hate moaning about my condition but I know I have to explain it fully.

I'm struggling at the moment, I wont lie - and I feel I have hardly any support as DH is struggling with how this will affect us financially and the things we can do as a family in the future as i feel i cant compalin about the pain. I dont have any friends who understand and will talk to me. I feel very alone right now.

Posted: 09 July 2008 at 1:57pm | IP Logged

AWW madz im so sorry your having such a rough time but you have lots of friends on here that are more than willing to listen, rant away we all need to sometimes

Big huggs to you xxx

Posted: 09 July 2008 at 2:05pm | IP Logged

Thanks Bopbop - tbh I feel a bit better already.

I have a plan of how to handle this and I've just had a lovely chat with a friend who has been very supportive.

DH has just called and been loads more supportive too.

I'll be fine! Dont know what I'd do without you girls to rant to though.

Posted: 09 July 2008 at 2:42pm | IP Logged

I'm glad to hear your feeling a bit better and that you have a plan in place.

Sounds like your sounding more positive which is good.

Good luck with filling out the forms, timing everything is a nightmare but it helps.

Posted: 11 July 2008 at 7:26pm | IP Logged

Hiya hun, me again...

I know how you feel about applying for DLA, it really is so demoralising filling in the forms as you try to get on the best you can and try to remain positive when these forms ask you to focus on what you 'can't do' and how difficult you find it.  In real terms though, it can bring in an extra £450 every 4 weeks in DLA alone and getting it increases your tax credits too as they have a 'disability' element.  That might mean that you can work hours that actually suit you, physically, mentally and financially.  You can then concentrate on getting better and having better mobility for longer instead of stressing and overdoing it.. It really can help tremendously hun and that's what it's there for.. People with ill health and/or disabilities sometimes can't work the same hours or in the same way as healthy, able bodied people and that's what it's there to address.  You can use your 'mobility' component to get a car to help you get around too, which again helps the bigger picture as you can get our more etc etc.. We didn't ask for this condition hun and the way I saw it, I paid in for long enough (hubby too) when I was working so that these things could be provided to other people who needed it and it just so happens that it's me who needs it now.  I've been awarded it 'indefinitely' which was really hard at first but it saved having to fill the forms and having the medical every couple of years so I suppose I'm thankfull for that..  I know it's horrible having the 'disabled' tag attached hun, no-one wants that but you have to be realistic.

Please go ahead with the claim hun, and remember to tell them about your other problems (your wrists etc) as that all plays a part too. 

I hope your managing a bit better today and please remember, we're all here and we totally understand!!

Big belated (& gentle) hugs hun..