| Posted: 29 August 2008 at 11:33am | IP Logged
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I have decided to change my blog to an SPD diary. It will take me a while to get it updated but with so much now going on with my SPD I want it documented. I hope that it will serve to help other SPD sufferers know they are not alone and to let people see what the options avaliable are. It also will be able to remind me what I have been through in a few years time when I am running to the park with Eds and this is a forgotten memory!
The blog is avaliable in Community > Blogs or on this link please don't feel you have to read it but it is avaliable if you are interested.
Just a smally update for you. I had my OT assessment today. Living in a house and being so bad at the moment the stairs in particular have become a big issue, as has showering etc. So I was put down as urgent and was lucky to been seen within just a couple of weeks.
I am already waiting for some aids, including a sofa raiser, bed rail, toilet frames and perching stool from the main office.
The local OT, Lisa has just left and she was lovely.
She is going to put an extra 'box' step by the front door so I have 2 smaller steps to get up instead of just one. She is refering me to wheelchair services so I can get an NHS wheelchair - but I will contact Red Cross about borrowing one in the mean time.
Short term she is providing me with a bath lift so I can get into and out of the bath without help and assistance which should help the pain in my hips (I hope) being able to actually sit in water. Long term she is going to get quotes to have a walk in shower put into the en-suite so I dont have to step up to get in the shower. I also will get a free standing stool so I can sit while showering.
As for the stairs, she wanted me to go upstairs with her to show her the bedroom and bathrooms so she saw first hand my attempts and getting me upstairs (consists of me sitting on the steps, moving me legs up to the step below me in one movement so they dont seperate - normally tied together with one of DH's ties - then using my arms to lift my body to the next step - then repeat - The osteoarthritis in my wrist and the pain I feel when ‘landing’ shooting through my groin and coccyx means this is a difficult way of coping and I normally rely on my husband to help me). She said I definately need a stairlift, I cannot carry on as I am - she cant see an issue with a stair lift, she is going to get two companies out to quote for them, then she has to apply for a grant to fit it. She is going to get it all pushed forward asap so it is as short a wait as possible, she understands my needs.
She also suggested once I had the DLA money coming in to consider getting a carer or cleaner to come in and help me out occassionally so we'll have to price that up once I have the DLA money. She thinks I should get Higher Mobility and Middle Care no problem.
So things are moving forward and I am slowing starting to feel more positive.
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Topic: SPD Blog and update
