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Lorretta
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| Posted: 21 May 2006 at 6:55pm | IP Logged
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Hi. I have 4 daughters. Three are heart healthy, but the youngest has Hypoplastic Left Heart Syndrome. I was wondering if any other mums on this site has a child with this condition or other heart defects.
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MUM2MAXTOM
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| Posted: 21 May 2006 at 6:58pm | IP Logged
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ooooh no i'm sorry to hear that. sending hugs. there is another mm on here who posted about her lo possibly having a hole in her heart. i think it may have been tilly (but i apologise to tilly and you if it isn't). is your daughter's condition treatable?
zo xx
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tilly
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| Posted: 21 May 2006 at 8:56pm | IP Logged
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yes hun it was me! svannah has to go on the 21st june to have a heart scan so i will know more then!
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feemcg
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| Posted: 21 May 2006 at 9:00pm | IP Logged
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My dh's side of the family are carriers of Hypertrophic Cardiomyopathy and although our eldest daughter is clear we are yet to test our youngest
I actually published an article on here about it
I'm sorry I haven't heard of your childs condition maybe you could do an article for the site about it
xxxxxxxxx
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Lorretta
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| Posted: 21 May 2006 at 9:40pm | IP Logged
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Hi. Thanx for the replies. Hypoplastic Left Heart syndrome! Where do I start?
The condition is where the left side of the heart never grew properly in the womb. A normal heart has 4 chambers. Right Atrium (blood collecting chamber), Right Ventricle ( pumping chamber that supplies blood to the lungs). Left Atrium (blood collecting chamber), Left Ventricle ( pumping chamber that supplies oxygenated blood to the body). Left Atrium grew. Left Ventricle never. It is a treatable condition with 3 stages of open heart surgery. The surgeons divert the right side to do all the work with a series of 3 shunts. The 1st shunt was performed when Krystall was 3 days old in July 2005. The 2nd was performed March 2006 at 8 months old. the 3rd will be performed by school age and she may also need a transplant in her adult years. Krystall was diagnosed antenatally at 20 weeks. There are 3 options the medics give if diagnosed before birth. Option 1: Termination. Option 2: Take the baby home to pass away naturally. Option 3: 3 stage surgery. The surgery only prolongs Krystall's life. Sadly to say, it is not a cure. I hope you manage to understand the way I've told this description, it's in the best way I can describe it really. Krystall is doing well though. She eats ok. She's doing well development wise, not crawling yet though.
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feemcg
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| Posted: 21 May 2006 at 9:47pm | IP Logged
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Must be tough for you hun
Good to hear she is doing well tho - she sounds like a wee fighter
xxxxxxx
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LittleP1984
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| Posted: 21 May 2006 at 9:50pm | IP Logged
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Aww poor little thing
Must b tough on all of ur family but its great shes such a little fighter & is doing well
Iv never heard of this condition either but ur description of it gives a good insight, cant imagine wot its like seeing ur baby go thru that
Hugs 2 u all
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MUM2MAXTOM
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| Posted: 21 May 2006 at 9:56pm | IP Logged
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gosh-what a traumatic start lo has had. you explained her heart condition very well-it sounds like you are extremely knowledgeable on the subject-maybe when you get time you could write an article on it. poor little thing to have go through all that surgery, she sounds amazingly tough.
sending lots of love and admiration your way. zo x
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Lorretta
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| Posted: 22 May 2006 at 9:28am | IP Logged
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I would like to do an article on Krystall's condition, but don't know what section to put it under? The surgery was the only option for us. Technically, Krystall is Gordon's ( dp) 1st child. He's step-dad to my other 3. Had to give her a chance at life, no matter how much it hurts to see her go through surgery. With the surgery, we have a chance to get to know her. We wouldn't of seen her smile, heard her cry or even seen her play with her toys if we'd chosen a different option. It has been hard for all of us, but Krystall is worth it. Just to see her go from milestone to milestone is one huge bonus. In 9 weeks time she will be 1. The medics said that Krystall may not see her 1st birthday. Looks like she is going to prove everyone wrong. At times, life can work miracles. Krystall is living proof.
xxxx
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Flipflop
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| Posted: 22 May 2006 at 9:40am | IP Logged
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Hi Lorretta if you want to write an actual members article then write it locally on your PC using something like 'Word' and then simply email it to admin@madmums.com , where we can then publish it for you on the site under the members articles section.
More on members articles HERE
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Topic: Heart defect
