| Posted: 08 January 2007 at 5:22pm | IP Logged
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Hi Georgina,
I'm really to hear that you've got it back again, especially so early... Did you have it with both your previous pregnancies?
With regard to help on the school run etc, I've got one thing to say - Health Visitor!!!! You should still be in touch with yours given the ages of your lo's and they should be able to help with the 'Home to School Scheme' where they (or your council) will provide a taxi/minibus/whatever to take Jennifer to/from school. Your HV should also be able to get in touch with the Home Help service and they might be able to help with some housework, shopping etc.. There are people out there to help, it's just knowing that and knowing to get the help that's the tricky bit... I had to find out the hard way, and usually I had to arrange everything myself as my HV is worth than useless... I think I've told him more about everything!!! and I'm not kidding!!
Have you applied, or do you get disability benefits? If you already get them, then under the Disability Discrimination Act, your council should provide this service free of charge with virtually no questions asked... If not, apply as soon as you can.. If, like me you end up on full rate care & mobility, you will end up kicking in all sorts of other benefits (not to mention the extra £100 per week which certainly helps) like: free road tax, parking, subsidised entry to various places etc etc.
The most important thing for you just now is to get all the help that you need in place as soon as you can as the longer you can stay out of the hospital the better it is for everyone concerned... even you!! Believe me I know coz I developed this first time around and spent the last three weeks in hosp which I thought was as bad as it could get... Nope!! second time around it started at 8 weeks and I spent the last three months in hospital.. I've got to say that it goes down as the most isolated and lonliest time of my life... You will be very lucky to find a MW who has full knowledge of the condition and it's limitations so you will probably get the constant "you really should try to weight bare as much as possible"... I actually found that I was educating the midwives on the condition, not the other way about...
Hopefully, you will not suffer too much and everything will go back to normal once the baby is born (as it does with most sufferers of SPD). If it doesn;t settle down after the birth, you might have the more sever form (DSP) which I have... That being the case, you would need other investigations once baby has arrived... Please don't worry about that though, the chances are that it'll be the SPD you have and with the proper management and awareness you will recover..
I know how frustrating, lonely, painful, depressing and debilitating this can be (christ, I've now got 7 years of experience of it..) so if you need to chat at any point, please get in touch...
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