| Posted: 28 March 2008 at 1:22am | IP Logged
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Argh sorry all I don’t mean to dump the following on you but I need to let it out before it consumes me tonight.
I had my first set of injections now 3 weeks ago and I was starting to feel some improvement in mobility, I’ve been managing to walk without the use of crutches in the day time (even though evening’s I’ve suffered for it) and the way I walk has become a more natural movement, but the pain hasn’t changed. I’m still getting the shooting pains, aching etc.
I’m sat here at stupid o’clock with tears streaming my face as I can’t get comfy and I can’t sleep. I don’t want to burden my family again so I’m trying to suffer in silence and not let on how much it’s all hurting. My shoulders are fudged along with my jaw, wrists, knees and ankles on top of the spd that makes me a right old mess…. On a bright note I suppose I should find comfort knowing at least I’m doing whatever it is properly and not a half hearted job.
I’m taking all my normal meds and staying up late due to not being able to get comfy and when dp finally drops off I take my morphine (as I don’t want him to know how much it’s hurting) so I can hopefully get a few hours sleep…. Well I would do if my youngest decided to sleep though the night.
I really was hoping for a more positive outcome and a sign that it might be working and further treatment is an option but at the moment I’m not sure. I won’t find out till June 17th anyway and then I’ll have to wait 3-4mths if they decide it’s best to continue…. I feel really deflated and resentful of others at the moment and I hate myself for feeling like this…. I’m fed up of planning things to a scale of what I can do in a day and if I have to do more, how I can reduce it the next day.
The thing with any illness or disability unless you have it no one quite understands how debilitating and lonely a thing it can be. It doesn’t just affect a person physically but mentally too. I feel guilty to my family and my children and I’m sure they’d be better off without me but then I see their faces and the way they run to me for hugs and kisses and I know it’s not true…. I wouldn’t change them for the world nor would they me but it’s still hard to hear them saying things like it’s ok mummy I understand you can’t do it I’ll ask my friends mum…. But having this site has helped me cling to sanity, without it I’d have gone over the edge long ago, there are people on here at understand and are in a similar position fighting similar battles and it helps take the element of isolation and entrapment way.
Sorry I don’t know if there’s a point to this post I’m just so sore and deflated and fed up I had to let it out before it consumed me, thank you for listening.
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